01
The summer that changed everything
It began like any other summer. Plans, small routines, a young family finding its rhythm. Nothing about it suggested that a few weeks later everything we understood about our lives would be rewritten.
Our story
The summer that changed everything
A diagnosis rearranges a life in an afternoon. This is what we learned, and why we decided to turn it into something that can help other families.
A journey
From two people to a foundation
- 2013
Found each other
- 2022
Married
- 2024
Became parents
- April 2025
First symptoms
- 13 August 2025
Diagnosis
- 19 August 2025
Surgery
- 2025–2026
Treatment & rehabilitation
- 2026
Ast'Ro Foundation
- October 2026
Research & hope
02
When something didn't feel right
Symptoms arrive quietly. A change you explain away. Then another. The hardest part of the early days was not knowing whether to worry, and the slow realisation that we should.
03
The day our lives changed
A diagnosis is a single sentence that divides time into before and after. We remember the room, the words, the silence afterwards, and how ordinary the rest of the world kept being.
04
Learning everything again
Surgery, then rehabilitation. Movement, speech, energy, confidence — things you never think about until they have to be rebuilt, step by patient step.
05
A rare and uncertain diagnosis
Rare diagnoses come with fewer answers. Fewer studies, fewer treatments, fewer certainties. That gap between what is known and what is needed is exactly where research matters most.
06
Learning to live between fear and hope
You do not choose one or the other. You learn to carry both, and to let the good days be genuinely good. Community makes that possible.
07
Why we created Ast'Ro Foundation
Because we met so many families walking the same road. Because research needs long-term funding. Because hope is something you can actually build, together, and then hand to someone else.
“You are not just making a donation. You are becoming part of a movement.”
The name
What Ast'Ro means
ASTRO
Astrocytoma, and stars as a symbol of hope. The science and the light, in one word.
RO
The person at the heart of this journey, without letting her illness define who she is.